Tuesday, 19 May 2009

Articles from Critical Care Medicine

Link to full text of journal
Wood, Gordon J. MD; Arnold, Robert M. MD;
How can we be helpful? Triggers for palliative care consultation in the surgical intensive care unit .[Editorial]
Critical Care Medicine. 37(3):1147-1148, March 2009.

Degenholtz, Howard B. PhD
Two and a half weeks: Time enough for end-of-life care planning? .[Editorial]
Source
Critical Care Medicine. 37(3):1145, March 2009.

Bradley, Ciaran T. MD; Brasel, Karen J. MD, MPH;
Developing guidelines that identify patients who would benefit from palliative care services in the surgical intensive care unit
Critical Care Medicine. 37(3):946-950, March 2009.
Abstract
Objective: The convergence of end-of-life care and surgical practice often occurs in the surgical intensive care unit (SICU). Because many patients who encounter difficult end-of-life issues in the SICU do not receive palliative care services, there is a need to educate surgeons on how to better identify those patients.Design: A group of 29 national and local experts were identified based on qualifications as surgical intensivists, palliative care specialists, or members of the American College of Surgeons Surgical Palliative Care Task Force. A smaller representative group initially identified responses to the question, "Which patients in the SICU should receive a palliative care consultation?" Using a modified Delphi technique, 31 proposed criteria were distributed electronically to the larger group and ranked through three rounds to generate a final list of ten.Setting: E-mail-based Delphi consensus panel.Subjects: National and local surgical palliative care experts.Interventions: Survey in three rounds.Results: Thirteen participants responded to the first round and 12 to the second. In the third round, the entire group was given the ten criteria for final approval. One half of the respondents were national authorities and the other half were local experts. The top five "triggers" for a palliative care consultation in descending order were: family request; futility considered or declared by the medical team; family disagreement with the medical team, the patient's advance directive, or each other lasting >7 days; death expected during the same SICU stay; and SICU stay >month.Conclusions: We offer a set of consensus guidelines derived from expert opinion that identifies critically ill surgical patients who would benefit from palliative care consultation. These criteria can be used to educate surgeons at large on the variety of clinical scenarios where palliative care specialists can offer support.

Camhi, Sharon L. ; Mercado, Alice F. ; Morrison, R Sean; Du, Qingling et al
Deciding in the dark: Advance directives and continuation of treatment in chronic critical illness
Critical Care Medicine. 37(3):919-925, March 2009.
Abstract
Objective: Chronic critical illness is a devastating syndrome for which treatment offers limited clinical benefit but imposes heavy burdens on patients, families, clinicians, and the health care system. We studied the availability of advance directives and appropriate surrogates to guide decisions about life-sustaining treatment for the chronically critically ill and the extent and timing of treatment limitation.Design: Prospective cohort study.Setting: Respiratory Care Unit (RCU) in a large, tertiary, urban, university-affiliated, hospital.Patients: Two hundred three chronically critically ill adults transferred to RCU after tracheotomy for failure to wean from mechanical ventilation in the intensive care unit.Interventions: None.Measurements and Main Results: We interviewed RCU caregivers and reviewed patient records to identify proxy appointments, living wills, or oral statements of treatment preferences, resuscitation directives, and withholding/withdrawal of mechanical ventilation, nutrition, hydration, renal replacement and vasopressors. Forty-three of 203 patients (21.2%) appointed a proxy and 33 (16.2%) expressed preferences in advance directives. Do not resuscitate directives were given for 71 patients (35.0%). Treatment was limited for 39 patients (19.2%). Variables significantly associated with treatment limitation were proxy appointment prior to study entry (time of tracheotomy/RCU transfer) (odds ratio = 6.7, 95% confidence interval [CI], 2.3-20.0, p = 0.0006) and palliative care consultation in the RCU (OR = 40.9, 95% CI, 13.1-127.4, p < 0.0001). Median (interquartile range) time to first treatment limitation was 39 (31.0-45.0) days after hospital admission and 13 (8.0-29.0) days after RCU admission. For patients dying after treatment limitation, median time from first limitation to death ranged from 3 days for mechanical ventilation and hydration to 7 days for renal replacement.Conclusions: Most chronically critically ill patients fail to designate a surrogate decision-maker or express preferences regarding life-sustaining treatments. Despite burdensome symptoms and poor outcomes, limitation of such treatments was rare and occurred late, when patients were near death. Opportunities exist to improve communication and decision-making in chronic critical illness.

International Journal of Palliative Nursing Vol 15 No 4 2009

p. 159
Crossing the divide.
Black, P.
pp. 160-161
Working in partnership to achieve optimal end-of-life care for people living with neurological conditions.
McClinton, P.; Byrne, J.
pp. 162-169
Understanding the management of lymphoedema for patients with advanced disease.
Honnor, A.
pp. 170-177
Sculpting the distress: easing or exacerbating the grief experience of same-sex couples.
Higgins, A.; Glacken, M.
pp. 178-185
Understanding the meaning of human dignity in Korea: a content analysis.
Jo, K.-H.; Doorenbos, A.Z.
pp. 186-189
Exploring the literature surrounding the transition into palliative care: a scoping review.
Marsella, A.
pp. 190-197
Understanding best practice within nurse intershift handover: what suits palliative care?.
Messam, K.; Pettifer, A.
pp. 198-203
Problems arising when caring for a dying patient with cancer: reflection on a critical incident.
Charalambous, A.; Papastavrou, E.
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End of Life Care Horizon Scanning Bulletin

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Tuesday, 21 April 2009

Articles from Critical Care Medicine

Link to full text of journal
Crippen, David MD, FCCM
Palliation for high-risk patients: Should we be watching? .[Editorial]
Source
Critical Care Medicine. 37(4):1498-1499, April 2009.

Whetstine, Leslie M. ; Crippen, David
Shortening the dying process: More than a feelin' .[Editorial]
Critical Care Medicine. 37(4):1489-1490, April 2009.

Song, Mi-Kyung ; De Vito Dabbs, Annette ; Studer, Sean M. ; Arnold, Robert M. Palliative care referrals after lung transplantation in major transplant centers in the United States
Critical Care Medicine. 37(4):1288-1292, April 2009.
Abstract
Objective: Although lung transplantation is a widely used treatment modality for patients with end-stage lung disease, its long-term outcomes are limited. Including palliative approaches in the care of lung transplant recipients may be beneficial; however, systematic information regarding the utilization of palliative care services for lung recipients is lacking.Design and Setting: Of the 27 transplant centers meeting the inclusion criteria (an annual lung transplant volume >=15 for the past 5 years and the availability of palliative care or pain services at the center), 74 clinicians representing either the transplant or palliative care program from 18 centers completed surveys.Results: Both transplant and palliative care clinician respondents strongly favored the idea of integrating palliative care into lung transplant care. However, the number of palliative care referrals made during the last year was low (<=5 per center). The three most frequently endorsed reasons for palliative care referrals were end-of-life planning, uncontrolled pain and symptoms, and limited functional status. The average length of survival after referral was <30 days. Palliative care clinicians considered misconceptions that palliative care meant "end-of-life care" as a major barrier, whereas transplant clinicians identified uncertainty about recipients' prognoses, the perception that palliative care precludes aggressive treatment, and difficulty in discussing palliative care with recipients and family as barriers.Conclusions: Despite clinicians' positive attitudes toward integrating palliative and lung transplant care, actual utilization of palliative care services is low. Collaborative efforts to enhance communication between the two programs are needed to clarify misconceptions and promote understanding between the programs.(C) 2009 Lippincott Williams & Wilkins, Inc.

Manthous, Constantine A.
Why not physician-assisted death?
Critical Care Medicine. 37(4):1206-1209, April 2009.
Abstract
Objective: The Hippocratic Oath states "[horizontal ellipsis] I will neither give a deadly drug to anybody who asked for it, nor will I make a suggestion to this effect" ( http://en.wikipedia.org/wiki/Hippocratic_Oath). Physician-assisted suicide and euthanasia are topics that engender a strong negative response on the part of many physicians and patients. This article explores contributions of religion, Western medical mores, law, and emerging concepts of moral neurocognition that may explain our inherent aversion to these ideas.Sources: Religious texts, legal opinions, manifestos of medical ethics, medical literature, and lay literature.Conclusion: Our collective repudiation of physician-assisted death, in all its forms, has complex origins that are not necessarily rational. If great care is taken to ensure that a request for physician-assisted death is persistent despite exhaustion of all available therapeutic modalities, then an argument can be made that our rejection constrains unnecessarily the liberty of a small number of patients.(C) 2009 Lippincott Williams & Wilkins, Inc.

Intl Journal of Palliative Nursing Vol 15 No 3 2009

p. 107
Out of pocket.
Black, P.
pp. 108-109
Can the palliative care services of today keep up and match the expectations of the `baby boomer' generation?.
Becker, R.
pp. 110-119
Effecting positive change with bereaved service users in a hospice setting.
Agnew, A.; Duffy, J.
pp. 120-127
A neurological care pathway for meeting the palliative care needs of people with life-limiting neurological conditions.
Brown, J.B.; Sutton, L.
pp. 128-133
The prebereavement psychological needs of AIDS-affected adolescents in Uganda.
Withell, B.
pp. 134-141
Providing comfort to patients in their palliative care trajectory: experiences of female nurses working in an acute setting.
Roche-Fahy, V.; Dowling, M.
pp. 142-147
Paediatric antiretroviral therapy outcomes under HIV hospice care in South Africa.
Harding, R.; Brits, H.; Penfold, S.

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Palliative medicine Vol 23 No 2 2009

Link to full text online
pp. 104-111
Symptom management for the adult patient dying with advanced chronic kidney disease: A review of the literature and development of evidence-based guidelines by a United Kingdom Expert Consensus Group.
Douglas, C.; Murtagh, F.E.M.; Chambers, E.J.; Howse, M.; Ellershaw, J.
p. 112
Original Articles.
pp. 112-120
Symptom burden and quality of life in end-stage renal disease: a study of 179 patients on dialysis and palliative care.
Yong, D.S.P.; Kwok, A.O.L.; Wong, D.M.L.; Suen, M.H.P.; Chen, W.T.; Tse, D.M.W.
pp. 121-126
Palliative stage Parkinson's disease: patient and family experiences of health-care services.
Giles, S.; Miyasaki, J.
pp. 127-132
Professionals delivering palliative care to people with COPD: qualitative study.
Spence, A.; Masson, F.; Waldron, M.; Kernohan, W.G.; McLaughlin, D.; Watson, B.et al
pp. 133-141
Patients' constructions of disability in metastatic spinal cord compression.
Eva, G.; Paley, J.; Miller, M.; Wee, B.
pp. 142-150
Family and friends provide most social support for the bereaved.
Benkel, I.; Wijk, H.; Molander, U.
pp. 151-158
Family meetings in palliative care: are they effective?.
Hudson, P.; Thomas, T.; Quinn, K.; Aranda, S.
pp. 159-165
A profile of the belief system and attitudes to end-of-life decisions of senior clinicians working in a National Health Service Hospital in the United Kingdom.
Pugh, E.J.; Song, R.; Whittaker, V.; Blenkinsopp, J.
pp. 166-171
The existential impact of starting corticosteroid treatment as symptom control in advanced metastatic cancer.
Lundstrom, S.; Furst, C.J.; Friedrichsen, M.; Strang, P.
pp. 172-179
Fatigue dimensions in patients with advanced cancer in relation to time of survival and quality of life.
Hagelin, C.L.; Wengstrom, Y.; Ahsberg, E.; Furst, C.J.
pp. 180-181
The cochrane pain, palliative and supportive care group: an update.
Wiffen, P.J.; Eccleston, C.
pp. 182-182
What keeps a palliative medicine physician so busy with patients? Time expenditure in palliative care.
Spoon, A.S.; Centeno, C.; Rodriguez, J.; Ros, W.

Palliative & Supportive Care Vol 7 No 1 2009

pp. 1-2
Is House, M.D., always right?.
Wein, S.
pp. 3-6
A call for simple and rational palliative medicine psychotropic prescribing guidelines: Response to Barnhorst et al. (Palliative & Supportive Care, Volume 6, Number 1, 2008).
Irwin, S.
pp. 7-12
The lived experience of parenting a child with a life-limiting condition: A focus on the mental health realm.
Rodriguez, A.; King, N.
pp. 13-26
Adolescents' experiences of a parent's serious illness and death.
Dehlin, L.; Martensson, L.
pp. 27-36
Place of death of adolescents and young adults with cancer: First study in a French population.
Montel, S.; Laurence, V.; Copel, L.; Pacquement, H.; Flahault, C.
pp. 37-48
Can short hospice enrollment be long enough? Comparing the perspectives of hospice professionals and family caregivers.
Waldrop, D.P.; Rinfrette, E.S.
pp. 49-56
Recruitment and retention of palliative cancer patients and their partners participating in a longitudinal evaluation of a psychosocial retreat program.
Garland, S.N.; Carlson, L.E.; Marr, H.; Simpson, S.
pp. 57-64
Implementation of computerized technology in a palliative care unit.
Andre, B.; Ringdal, G.I.; Loge, J.H.; Rannestad, T.; Kaasa, S.
pp. 65-74
The patient lived experience for surgical treatment of colorectal liver metastases: A phenomenological study.
McCahill, L.; Hamel-Bissell, B.P.
pp. 75-86
The project ENABLE II randomized controlled trial to improve palliative care for rural patients with advanced cancer: Baseline findings, methodological challenges, and solutions.
Bakitas, M.; Lyons, K.D.; Hegel, M.T.; Balan, S.; Barnett, K.N.; Brokaw, F.C et al
pp. 87-96
Individual brief art therapy can be helpful for women with breast cancer: A randomized controlled clinical study.
Thyme, K.E.; Sundin, E.C.; Wiberg, B.; Oster, I.; Astrom, S.; Lindh, J.
pp. 97-108
The spiritual meaning of pre-loss music therapy to bereaved caregivers of advanced cancer patients.
Magill, L.
pp. 109-120
Morbidity, mortality, and parental grief: A review of the literature on the relationship between the death of a child and the subsequent health of parents.
Hendrickson, K.
pp. 121-131
Personal reflections on love, death and suffering: My narrative of the final days of my husband's life.
Sjolander, C.T.

Tuesday, 7 April 2009

New book in the Library

Now in stock
Palliative care : an integrated approach by Jenny Buckley
Published 2008
Shelved at 616.994 BUC

Thursday, 19 March 2009

International Journal of Palliative Nursing Vol 15 No 2 2009

Link to full text of journal
p. 55
Are your shoelaces shortening?.
Nyatanga, B.
pp. 56-57
Broadcasting death and the legality of assisted suicide: are they the antithesis to palliative care?.
Smyth, D.
pp. 58-65
Exploring the causes, assessment and management of constipation in palliative care.
Brown, E.; Henderson, A.; McDonagh, A.
pp. 66-73
Phase 1 of an investigation into the levels of stress in United Kingdom hospice services.
Hackett, A.; Palmer, S.; Farrants, J.
pp. 74-79
The meaning of Friday afternoon tea for informal caregivers on a palliative care unit.
Parsons, S.; Anderson, C.
pp. 80-85
Understanding patients' lived experience following photodynamic therapy for the treatment of advanced cancer.
Walker, G.; Andrew, J.
pp. 86-93
Developing spiritual and religious care competencies in practice: pilot of a Marie Curie blended learning event.
Smith, T.; Gordon, T.
pp. 94-100
Recognizing the importance of palliative care skills for community matrons.
Bowler, M.; Mayne, G.; Gamlin, R.

Friday, 6 March 2009

BMC Palliative Care

Dying from cancer or other chronic diseases in the Netherlands: ten-year trends derived from death certificate data
Lud FJ van der Velden, Anneke L Francke, Lammert Hingstman, Dick L Willems
BMC Palliative Care 2009, 8:4 (4 February 2009)
http://www.biomedcentral.com/content/pdf/1472-684X-8-4.pdf

Palliative care referrals after lung transplantation

Link to full text of journal
Song, Mi-Kyung PhD; Vito Dabbs, Annette De PhD; Studer, Sean M. MD; Arnold, Robert M. MD; Palliative care referrals after lung transplantation in major transplant centers in the United States
Critical Care Medicine.
Publish Ahead of Print, POST COPYEDIT, 24 February 2009
Abstract
Objective: Although lung transplantation is a widely used treatment modality for patients with end-stage lung disease, its long-term outcomes are limited. Including palliative approaches in the care of lung transplant recipients may be beneficial; however, systematic information regarding the utilization of palliative care services for lung recipients is lacking.Design and Setting: Of the 27 transplant centers meeting the inclusion criteria (an annual lung transplant volume >=15 for the past 5 years and the availability of palliative care or pain services at the center), 74 clinicians representing either the transplant or palliative care program from 18 centers completed surveys.Results: Both transplant and palliative care clinician respondents strongly favored the idea of integrating palliative care into lung transplant care. However, the number of palliative care referrals made during the last year was low (<=5 per center). The three most frequently endorsed reasons for palliative care referrals were end-of-life planning, uncontrolled pain and symptoms, and limited functional status. The average length of survival after referral was <30>

Annual Evidence Update on Pain

Annual Evidence Update on Pain (Supportive and Palliative Care
Specialist Library)
http://www.library.nhs.uk/palliative
This Annual Evidence Update collects together the latest high quality
evidence on three important aspects of pain in supportive and palliative
care: Cannabinoids for pain management, Pain management in dementia,
Pain and cancer survivorship.

PALLIATIVE MEDICINE Vol 23 No 1 2009

Link to full text of journal
pp. 5-7
Imagine: a creative challenge towards holism.
Groves, K.E.
pp. 8-16
Pain in patients living in Norwegian nursing homes.
Torvik, K.; Kaasa, S.; Kirkevold, O.; Rustoen, T.
pp. 17-22
A systematic review of specialised palliative care for terminal patients: which model is better?.
Garcia-Perez, L.; Linertova, R.; Martin-Olivera, R.; Serrano-Aguilar, P.; Benitez-Rosario, M.A.
pp. 23-28
Evaluation of hospital palliative care teams: strengths and weaknesses of the before-after study design and strategies to improve it.
Simon, S.; Higginson, I.J.
pp. 29-39
Advanced cancer patients' prognostic information preferences: a review.
Innes, S.; Payne, S.
pp. 40-45
Validation of the confusion assessment method in the palliative care setting.
Ryan, K.; Leonard, M.; Guerin, S.; Donnelly, S.; Conroy, M.; Meagher, D.
pp. 46-53
How is sleep quality affected by the psychological and symptom distress of advanced cancer patients?.
Mystakidou, K.; Parpa, E.; Tsilika, E.; Gennatas, C.; Galanos, A.; Vlahos, L.
pp. 54-58
Intranasal sufentanil for cancer-associated breakthrough pain.
Good, P.; Jackson, K.; Brumley, D.; Ashby, M.
pp. 59-65
Difficulties of residents in training in end-of-life care. A qualitative study.
Luthy, C.; Cedraschi, C.; Pautex, S.; Rentsch, D.; Piguet, V.; Allaz, A.F.
pp. 66-79
Defining distinct caregiver subpopulations by intensity of end-of-life care provided.
Abernethy, A.; Burns, C.; Wheeler, J.; Currow, D.
pp. 80-86
Reflecting the scope and work of palliative care teams today: an action research project to modernise a national minimum data set.
Jack, B.A.; Littlewood, C.; Eve, A.; Murphy, D.; Khatri, A.; Ellershaw, J.E.
pp. 87-94
Impact of perception of socioeconomic burden on advocacy for patient autonomy in end-of-life decision making: a study of societal attitudes.
Kwon, Y.C.; Shin, D.W.; Lee, J.H.; Heo, D.S.; Hong, Y.S.; Kim, S.-Y.; Yun, H.Y.

Cases Journal 2009

Patient and/or family controlled palliative sedation with midazolam for intractable symptom control: a case report
Aretha D, Panteli ES, Kiekkas P, Karanikolas M Cases Journal 2009, 2:136 (11 February 2009)[Abstract] [Provisional PDF] [PubMed]

Friday, 2 January 2009

Tuesday, 30 December 2008

International Journal of Palliative Nursing 2008 Vol 14 Part 11

Link to journal online
Palliative care in changing economic times
Ling , J .
Page: 523-525

I can not get a breath : experiences of living with advanced chronic obstructive disease
Hasson , F . ; Spence , A . ; Waldron , M et al
Page: 526-531

Norwegian nurses' thoughts and feelings regarding the ethics of palliative sedation
Gran , S . V . ; Miller , J
Page: 532-538

Spiritual care as a dimension of holistic care : a relational interpretation
Bush , T . ; Bruni , N
Page: 539-545

Patient perspective : what do palliative care patients think about their care ?
Conner , A . ; Allport , S . ; Dixon , J . ; Somerville , A . - M .
Page: 546-553

Involving and engaging patients in cancer and palliative care research : workshop presentation
Johnston , B . ; Forbat , L . ; Hubbard , G .
Page: 554-559

The impact of a modular HIV / AIDS palliative care education programme in rural Uganda
Downing , J . ; Kawuma , E
Page: 560-570

Progress in Palliative Care 2008 Vol 16 Part 5 / 6

Why should palliative care clinicians learn about heart failure ?
Goodlin , S . J .
Page: 215-219

Referral for palliative care in advanced heart failure
Albert , N . M .
Page: 220-228

Medical management of advanced heart failure
Rocchiccioli , P . ; McMurray , J
Page: 229-240

Palliative symptom management in patients with heart failure
Zambroski , C . H . ; Bekelman , D B .
Page: 241-249

The management of implantable cardiac devices at the end of life
Kirkpatrick , J . N . ; Knight , B P .
Page: 250-256

Spirituality and suffering of patients with heart failure
Westlake , C . ; Dyo , M . ; Vollman , M . ; Heywood , J . T .
Page: 257-266

Quantity and Level of Evidence of Palliative and Hospice Care Literature

Changes in the Quantity and Level of Evidence of Palliative and Hospice Care Literature : The Last Century
Jennifer Tieman
Journal of Clinical Oncology
Page: 5679 - 5683
VOL 26 ; PART 35 2008-December-10

Palliative care service provision for COPD patients

Palliative care service provision for COPD patients - results from the 2008 National COPD Audit
Buxton , K . L . ; Roberts , C . M ; Buckingham , R . J . ; Pursey , N . ; Stone , R . A .
Thorax
Page: S27
2008 ; VOL 63 ; SUPP / 7