Monday, 1 December 2008

Delivering Quality Palliative and End of Life Care Services for Children and Young People

I enclose an invitation to our forthcoming Westminster Briefing entitled "Delivering Quality Palliative and End of Life Care Services for Children and Young People" which will be hosted by The House Magazine on Wednesday, 25th February 2009 to be held in Westminster.
When people think of palliative and end of life care the common assumption is made that services are designed and oriented towards adults. However, according to The Association for Children with Life-Threatening or Terminal Conditions and their Families (ACT) at least 15,000 children require palliative care in the UK. Whilst it is acknowledged that some parallels can be drawn between the principles applying to end of life care services for adults and those for children and young people, there are also significant and unique differences. The children's palliative care strategy, Better Care: Better Lives , was launched to address these distinctive distinctions and improve outcomes and experiences for all children and young people with life-limiting and life-threatening conditions. While the death of any single person can be traumatic, a child's death remains emotionally difficult, unnatural and unexpected for families and healthcare providers alike.
Delegates at this Westminster Briefing will have the opportunity to consider the progress of the children's palliative and end of life care strategy and discuss what more needs to be done to ensure its aims are achieved. Participants will also examine case studies and examples of best practice concerning the delivery of children's palliative care and discuss how these successful models can be disseminated more widely.
Please click here for further details.


A Qualitative Report of Dual Palliative Care / Ethics Consultations

A Qualitative Report of Dual Palliative Care / Ethics Consultations : Intersecting Dilemmas and Paradigmatic Cases
Childers , J . W . ; Demme , R . ; Greenlaw , J . ; King , D . A . ; Quill , T .
Journal of Clinical Ethics
Page: 204-213
2008 ; VOL 19 ; PART 3

Setting up home - based palliative care

Setting up home - based palliative care in countries with limited resources : a model from Sarawak , Malaysia
B . C . R . Devi
Annals of Oncology
Page: 2061 - 2066
2008 ; VOL 19 ; PART 12 Date: 2008-December

ACP Releases Recommendations for Palliative Care at the End of Life

ACP Releases Recommendations for Palliative Care at the End of Life
American Family Physician
Page: 1093-1096
2008 ; VOL 78 ; PART 9

Journal of Advanced Nursing Vol 64 Issue 6 2008.

Next-of-kin caregivers in palliative home care – from control to loss of control
Berit Munck, Bengt Fridlund, Jan M¤ârtensson
Pages: 578-586
http://www3.interscience.wiley.com/cgi-bin/abstract/121431365/ABSTRACT
Published Online: 7 Oct 2008

A study of nurses` knowledge of a palliative approach in residential aged care facilities

A study of nurses` knowledge of a palliative approach in residential aged care facilities
Ronaldson , Susan ; Hayes , Lillian ; Carey , Michele ; Aggar , Christina
International Journal of Older People Nursing
Page: 258-267
2008 ; VOL 3 ; PART 4 Date: 2008/12/01

Neurocritical Care 2008 Vol 9 Supplement

A Survey of Neuroscience ICU Nursing Attitudes Towards Palliative Care Consults
Warford , K .
Neurocritical Care
Page: 52 Vol/Issue: 2008 ; Volume 9 ; SUPP

The use of narcotics and benzodiazepines during palliative care in a neurological intensive care unit
Rives , J .
Neurocritical Care
Page: 54 Vol/Issue: 2008 ; Volume 9 ; SUPP

Cancer : Palliative Care in the Primary Care Setting

Cancer : Palliative Care in the Primary Care Setting
Geriatrics and Aging
Page: 506-508
2008 ; VOL 11 ; PART 9

A prospective study of unmet activity of daily living needs in palliative care inpatients

A prospective study of unmet activity of daily living needs in palliative care inpatients
Lalitha Jeyasingam ; Meera Agar ; Michael Soares ; John Plummer ; David Currow
Australian Occupational Therapy Journal
Page: 266-272
2008 ; VOL 55 ; PART 4 Date: December 2008

DNR Does Not Mean DNRx

DNR Does Not Mean DNRx : How Palliative Care Can Help Facilitate Communication about Goals of Care in Advanced Illness
Smith , C . B . ; Bunch , L
Mount Sinai Journal of Medicine
Page: 460-465 Vol/Issue: 2008 ; VOL 75 ; PART 5

BMC Palliative Care

www.biomedcentral.com/bmcpalliatcare/
General Practitioners' use and experiences of palliative care services: a survey in South East England.
Sabrina Bajwah, Irene J Higginson
BMC Palliative Care 2008, 7:18 (5 November 2008)
Provisional PDF http://www.biomedcentral.com/content/pdf/1472-684X-7-18.pdf

A randomized, double-blind comparison of OROS hydromorphone and controlled-release morphine for the control of chronic cancer pain
Magdi Hanna, John Thipphawong, 118 Study group
BMC Palliative Care 2008, 7:17 (31 October 2008)
Provisional PDF http://www.biomedcentral.com/content/pdf/1472-684X-7-17.pdf