Monday, 15 February 2010

Palliative Medicine Vol 23 No 8 2009

Link to journal online
pp. 680-690
Quantifying the impact of standardized assessment and symptom management tools on symptoms associated with cancer-induced anorexia cachexia syndrome.
Andrew, I.M.; Waterfield, K.; Hildreth, A.J.; Kirkpatrick, G.; Hawkins, C.

pp. 691-697
Living with advanced chronic obstructive pulmonary disease: patients concerns regarding death and dying.
Gardiner, C.; Gott, M.; Small, N.; Payne, S.; Seamark, D.; Barnes, S.; Halpin, D.; Ruse, C.

pp. 698-707
Collaborating or co-existing: a survey of attitudes of medical oncologists toward specialist palliative care.
Ward, A.M.; Agar, M.; Koczwara, B.

pp. 708-717
Costs associated with resource utilization during the palliative phase of care: a Canadian perspective.
Dumont, S.; Jacobs, P.; Fassbender, K.; Anderson, D.; Turcotte, V.; Harel, F.

pp. 718-722
Governance in changing times: the experiences of hospice trustees in the United Kingdom.
Turner, M.; Payne, S.

pp. 723-730
Barriers to achieving care at home at the end of life: transferring patients between care settings using patient transport services.
Ingleton, C.; Payne, S.; Sargeant, A.; Seymour, J.

pp. 731-738
Modafinil for attentional and psychomotor dysfunction in advanced cancer: a double-blind, randomised, cross-over trial.
Lundorff, L.E.; Jonsson, B.H.; Sjogren, P.

pp. 739-753
Depression assessment and classification in palliative cancer patients: a systematic literature review.
Wasteson, E.; Brenne, E.; Higginson, I.J.; Hotopf, M. et alEuropean Palliative Care Research Collaborative (EPCRC)

pp. 754-766
The palliative care knowledge test: reliability and validity of an instrument to measure palliative care knowledge among health professionals.
Nakazawa, Y.; Miyashita, M.; Morita, T.; Umeda, M.; Oyagi, Y.; Ogasawara, T.

pp. 767-776
Making sure services deliver for people with advanced heart failure: a longitudinal qualitative study of patients, family carers, and health professionals. Boyd, K.J.; Worth, A.; Kendall, M.; Pratt, R. et al

pp. 777-779
The pragmatic use of apomorphine at the end of life.
Dewhurst, F.; Lee, M.; Wood, B.

End of Life Care Horizon Scanning Bulletin

The Volume 2 Issue 1 End of Life Care Horizon Scanning Bulletin has now been published at
To subscribe to future issues of the newsletter, visit and input your email address and the verification code.

European Journal of Cancer Care Vol 19 No 2 2010

p 144-144
End of life care
Published Online: 4 Feb 2010

p 243-250
Significant improvement in quality of life of patients with incurable cancer after designation to a palliative homecare team
Published Online: 17 Aug 2009

p 267-272
A new hospice consulting system for terminal cancer patients in transferring to post-acute care options in Taiwan
P.M.-H. CHANG, Y.-Y.L. LIU, T.-C. CHAO, H.-L. LIN et al
Published Online: 26 Aug 2009

Clinical notes
p 273-275
'Where Shall I Find a White Rose . . . ?': an end-of-life narrative
Published Online: 16 Aug 2009

BMJ 2nd Feb 2010

Action is needed now on end of life care, says King’s Fund
Helen Mooney
BMJ 2010;340 c485

BMC Palliative Care Jan 2010

Facilitating needs based cancer care for people with a chronic disease: Evaluation of an intervention using a multi-centre interrupted time series design
Amy Waller, Afaf Girgis, Claire Johnson, Geoff Mitchell, Patsy Yates et al
BMC Palliative Care 2010, 9:2 (11 January 2010)
Provisional PDF

What "best practice" could be in Palliative Care: an analysis of statements on practice and ethics expressed by the main Health Organizations
Gaia Barazzetti, Claudia Borreani, Guido Miccinesi, Franco Toscani
BMC Palliative Care 2010, 9:1 (7 January 2010)
Provisional PDF

Policies to improve end-of-life decisions in Flemish hospitals: communication, training of health care providers and use of quality assessments
Ina D'Haene, Robert H Vander Stichele, H Roeline W Pasman, Nele Noortgate, Johan Bilsen, Freddy Mortier, Luc Deliens
BMC Palliative Care 2009, 8:20 (30 December 2009)

Friday, 29 January 2010

End of life care e-learning programme launced

An e-learning project, End of Life Care for All (e-ELCA), has been launched with the aim of supporting the national End of Life Care Strategy by enhancing the training and education of all those who may be involved in delivering end of life care, wherever their location.
Information on e-ELCA and some sessions open to the public can be accessed at
Health and social care workers aiming to register for access to additional sessions should visit

Thursday, 31 December 2009

BMJ 22 Dec 2009

Doctors’ view of care pathway for dying patients clashes with audit findings
Zosia Kmietowicz
BMJ 2009;339 b3799

International Journal of Palliative Nursing Vol 15 No 11 2009

p. 523
Finding meaning in distress.
Smyth, D.
pp. 524-525
Conducting research in palliative care patients: a burden or an opportunity?.
Preston, N.; Payne, S.; Todd, C.
pp. 526-532
The role of the home-care worker in palliative and end-of-life care in the community setting: a literature review.
Devlin, M.; McIlfatrick, S.
pp. 533-540
Methylnaltrexone: a subcutaneous treatment for opioid-induced constipation in palliative care patients.
Kyle, G.
pp. 541-547
To find inner peace: soft massage as an established and integrated part of palliative care.
Beck, I.; Runeson, I.; Blomqvist, K.
pp. 548-553
Making decisions about care: what it means for hospice inpatients with terminal progressive disease.
Fisher, S.; Colyer, H.
pp. 554-561
Evaluation of the introduction of an advanced care plan into multiple palliative care settings.
Newton, J.; Clark, R.; Ahlquist, P.
pp. 562-565
Supporting cancer patients and their carers: the contribution of art therapy and clinical psychology.
Jones, G.; Browning, M.

Cases Journal 23 Dec 2009

Morphine-induced hallucinations - resolution with switching to oxycodone: a case report and review of the literature
Mursheda Mahbub Chowdhury, Richard Board
Cases Journal 2009, 2:9391 (23 December 2009)
Provisional PDF

BMC Palliative Care

BMC Palliative Care
GPs views on transfer of information about terminally ill patients to the out-of-hours co-operative.
Bart Schweitzer, Nettie Blankenstein, Maartje Willekens, Elmi Terpstra, Paul Giesen, Luc Deliens
BMC Palliative Care 2009, 8:19 (22 December 2009)
Provisional PDF

Associations between successful palliative cancer pathways and community nurse involvement
Mette Asbjoern Neergaard, Peter Vedsted, Frede Olesen, Ineta Sokolowski, Anders Bonde Jensen, Jens Sondergaard
BMC Palliative Care 2009, 8:18 (14 December 2009)
Provisional PDF

Out-of-hours palliative care provided by GP co-operatives: availability, content and effect of transferred information
Bart PM Schweitzer, Nettie Blankenstein, Luc Deliens, Henriette Horst
BMC Palliative Care 2009, 8:17 (28 November 2009)

Friday, 4 December 2009

BMJ 1st Dec 2009

End of life care in the acute hospital setting
Polly Edmonds, Rachel Burman, and Wendy Prentice
BMJ 2009;339 b5048

New interim guidance on assisted suicide
Richard Huxtable and Karen Forbes
BMJ 2009;339 b4900

Cases Journal Nov 2009

Chemotherapy with low-dose capecitabine as palliative treatment in a patient with metastatic breast cancer: a case report
Takashi Kawaguchi, Satoru Iwase, Hironori Takeuchi, Ayako Ikeda, Yujiro Kuroda, Naoko Sakata, Megumi Umeda, Kaori Kobara, Tadaharu Matsunaga, Sakae Unezaki, Yoshinori Nagumo
Cases Journal 2009, 2:9081 (24 November 2009)

BMC Palliative Care 3 Nov 2009

Unbearability of suffering at the end of life: the development of a new measuring device, the SOS-V
Kees DM Ruijs, Bregje D Onwuteaka-Philipsen, Gerrit van der Wal, Ad JFM Kerkhof
BMC Palliative Care 2009, 8:16 (3 November 2009)

Palliative & Supportive Care Vol 7 No 3 2009

pp. 269-270
The Congress of Vienna.
Breitbart, W.
pp. 271-280
Reappraisal in the eighth life cycle stage: A theoretical psychoeducational intervention in elderly patients with cancer.
Holland, J.; Poppito, S.; Nelson, C.; Weiss, T.; Greenstein, M.; Martin, A.; Thirakul, P.; Roth, A.
pp. 281-288
Adjusting to pancreatic cancer: Perspectives from first-degree relatives.
Petrin, K.; Bowen, D.J.; Alfano, C.M.; Bennett, R.
pp. 289-298
Quality of life measures (EORTC QLQ-C30 and SF-36) as predictors of survival in palliative colorectal and lung cancer patients.
Grande, G.E.; Farquhar, M.C.; Barclay, S.I.G.; Todd, C.J.
pp. 299-306
Associations with worry about dying and hopelessness in ambulatory ovarian cancer patients.
Shinn, E.H.; Taylor, C.L.C.; Kilgore, K.; Valentine, A.; Bodurka, D.C.; Kavanagh, J.; Sood, A.; Li, Y.; Basen-Engquist, K.
pp. 307-314
The psychological responses of outpatient breast cancer patients before and during first medical consultation.
Okazaki, S.; Iwamitsu, Y.; Masaru, K.; Todoroki, K.; Suzuki, S.; Yamamoto, K.; Hagino, M.; Watanabe, M.; Miyaoka, H.
pp. 315-322
Development and validation of the Family Decision-Making Self-Efficacy Scale.
Nolan, M.T.; Hughes, M.T.; Kub, J.; Terry, P.B.; Astrow, A.; Thompson, R.E.; Clawson, L.; Texeira, K.; Sulmasy, D.P.
pp. 323-330
Validation of the Demoralization Scale in an Irish advanced cancer sample.
Mullane, M.; Dooley, B.; Tiernan, E.; Bates, U.
pp. 331-338
Attitudes of Quebec doctors toward sedation at the end of life: An exploratory study.
Blondeau, D.; Dumont, S.; Roy, L.; Martineau, I.
pp. 339-348
Perspectives on palliative care in Lebanon: Knowledge, attitudes, and practices of medical and nursing specialties.
Huijer, H.A.-S.; Dimassi, H.; Abboud, S.
pp. 349-356
International comparison study on the primary concerns of terminally ill cancer patients in short-term life review interviews among Japanese, Koreans, and Americans.
Ando, M.; Morita, T.; Ahn, S.-H.; Marquez-Wong, F.; Ide, S.
pp. 357-364
Providing care and sharing expertise: Reflections of nurse-specialists in palliative home care.
Arnaert, A.; Wainwright, M.
pp. 365-378
Hope in palliative care: An integrative review.
Kylma, J.; Duggleby, W.; Cooper, D.; Molander, G.

Tuesday, 10 November 2009

Palliative Medicine Vol 23 No 7 2009

Link to journal online
pp. 577-580
Palliative sedation: welcome guidance on a controversial issue.
Hauser, K.; Walsh, D.
pp. 581-593
European Association for Palliative Care (EAPC) recommended framework for the use of sedation in palliative care.
Cherny, N.I.; Radbruch, L.; The Board of the European Association for Palliative Care
pp. 594-600
What do patients with brain metastases from non-small cell lung cancer want from their treatment?.
Dorman, S.; Hayes, J.; Pease, N.
pp. 601-607
Improving training in spiritual care: a qualitative study exploring patient perceptions of professional educational requirements.
Yardley, S.J.; Walshe, C.E.; Parr, A.
pp. 608-615
Physician factors associated with outpatient palliative care referral.
Ahluwalia, S.C.; Fried, T.R.

International Journal of Palliative Nursing Vol 15 No 10 2009

p. 471
Editorial: Listening to that still small voice.
Larkin, P.
pp. 472-473
How notorious do dying prisoners need to be to receive high quality end-of-life care?.
Turner, M.; Barbarachild, Z.; Kidd, H.; Payne, S.
pp. 474-480
Understanding lymphoedema in advanced disease in a palliative care setting.
Todd, M.
pp. 481-487
Implementation and evaluation of a palliative care resource scheme within a district general hospital.
Rees, Y.; Jones, S.; Parry, M.
pp. 488-498
Flemish palliative care nurses' attitudes toward euthanasia: a quantitative study.
Gielen, J.; van den Branden, S.; van Iersel, T.; Broeckaert, B.
pp. 499-509
Learning from each other: cross-cultural insights on palliative care in Indian and Australian regions.
McGrath, P.; Holewa, H.; Koilparampil, T.; Koshy, C.; George, S.
pp. 510-514
Using play therapy in paediatric palliative care: listening to the story and caring for the body.
van Breemen, C.

International Journal of Palliative Nursing Vol 15 No 9 2009

p. 419
Education in the spotlight.
Becker, B.
pp. 420-421
The Liverpool Care Pathway.
Chapman, S.; Aldridge, H.
pp. 422-431
A description and comparison of palliative care services in the United Kingdom and Czech Republic.
Svecova, K.
pp. 432-439
Paediatric nurses' knowledge of palliative care in Florida: A quantitative study.
Knapp, C.A.; Madden, V.; Wang, H.; Kassing, K.; Curtis, C.; Sloyer, P.; Shenkman, E.A.
pp. 440-445
A multicultural perspective on conducting palliative care research in an Indian population in Australia.
Shanmugasundaram, S.; O Connor, M.; Sellick, K.
pp. 446-455
An analysis of the palliative care education needs of RGNs and HCAs in nursing homes in Ireland.
McDonnell, M.M.; McGuigan, E.; McElhinney, J.; McTeggart, M.; McClure, D.
pp. 456-462
The human face behind an ethical dilemma: Reflecting on attempted suicide and outcomes of a case study.
Sneesby, L.

The New England Journal of Medicine Oct 15 2009

Dialysis in Frail Elders -- A Role for Palliative Care [editorial]
R.M. Arnold and M.L. Zeidel

Monday, 9 November 2009

BMJ 22 Sep 2009

Consultation opens on guidance for prosecuting in cases of assisted dying
Clare Dyer
BMJ 2009;339 b3909

Doctors’ view of care pathway for dying patients clashes with audit findings
Zosia Kmietowicz
BMJ 2009;339 b3799

Palliative Medicine Vol 23 No 6 2009

Link to journal online
pp. 482-490
Methodological review: measured and reported congruence between preferred and actual place of death.
Bell, C.L.; Somogyi-Zalud, E.; Masaki, K.H.
pp. 491-501
Symptoms and problems in a nationally representative sample of advanced cancer patients.
Johnsen, A.T.; Petersen, M.A.; Pedersen, L.; Groenvold, M.
pp. 502-511
An evaluation of the implementation of a programme to improve end-of-life care in nursing homes.
Badger, F.; Clifford, C.; Hewison, A.; Thomas, K.
pp. 512-517
An integrated model of provision of palliative care to patients with cystic fibrosis.
Bourke, S.J.; Doe, S.J.; Gascoigne, A.D.; Heslop, K.; Fields, M.; Reynolds, D.; Mannix, K.
pp. 518-525
An evaluation of two decision-making scales for children with life-limiting illnesses.
Knapp, C.; Huang, I.C.; Madden, V.; Vadaparampil, S.; Quinn, G.; Shenkman, E.
pp. 526-536
The supportive and palliative care needs of Australian families of children who die from cancer.
Monterosso, L.; Kristjanson, L.J.; Phillips, M.B.
pp. 537-544
"We will remember them'': a mixed-method study to explore which post-funeral remembrance activities are most significant and important to bereaved people living with loss, and why those particular activities are chosen.
Vale-Taylor, P.
pp. 545-548
Are end-of-life patient education materials readable?
Ache, K.A.; Wallace, L.S.
pp. 549-555
'They're part of the team': participant evaluation of the ACTIVE intervention.
Oliver, D.P.; Washington, K.T.; Wittenberg-Lyles, E.; Demiris, G.; Porock, D.
pp. 556-564
The use of artificial nutrition among cancer patients enrolled in palliative home care services.
Orrevall, Y.; Tishelman, C.; Permert, J.; Cederholm, T.
pp. 565-566
End-of-life decisions in the United Kingdom.
van der Heide, A.; Onwuteaka-Philipsen, B.; Deliens, L. et al
pp. 567-568
End-of-life decisions in the UK: a response to van der Heide and colleagues.
Seale, C.
p. 569
End-of-life decisions in the United Kingdom involving medical practitioners and legalisation of euthanasia or physician-assisted suicide: survey of doctors' attitudes.
Grogan, E.; Beattie, R.; Campbell, C.; George, R.; Harlow, T.; MacGregor, B. et al
p. 570
UK doctors' attitudes to the legalisation of assisted suicide.
Lee, W.; Price, A.; Rayner, L.; Hotopf, M.
pp. 571-572
Liverpool care pathway carers survey.
Mullick, A.; Beynon, T.; Colvin, M.; Morris, M.; Shepherd, L.; Cave, L.; Lowell, J.; Asmall, N.; Carey, I.